January 17th, 2026
Ryan had a big day yesterday! He wanted to get out of the house so Jesse and I took him to the Viewmont Mall. He enjoyed going to all the sports stores and getting Dairy Queen! He was out and walking around for a good part of the day. When we got home he took a nap and then we went to the Wilkes Barre/Scranton Penguins game. The team had come to the children's hospital while Ryan was there and then sent tickets for him to be able to go to a game. Ryan isn't much of a hockey fan but once we got to the game he had a great time.
It had snowed a little overnight last night and was still snowing when we got up today. Ryan did some snow shoveling and then sledding. We all had a lot of fun sledding!
I've already heard from Texas Children's Hospital about getting his care transferred there and getting him established as a patient with them. He has an appointment for the week we get to Texas.